Lowest Number of Expected Births, but not for Babies with Down syndrome

CDC report on expected number of births a woman will have in her lifetime The CDC reports that as of 2018 in the United States, the expected number of births a woman would have over her lifetime is at a record low. But, according to recent reports, the number of babies with Down syndrome is not declining. Continue Reading

Peanut Butter Falcon: A New Way of Calling Someone the R-word

A film starring an actor with Down syndrome alongside A-list stars provides an insight on how you can call someone the "R"-word without even saying it. Continue Reading

All met some, none met all: Labs adherence to reporting guidelines for prenatal testing

A study of cell free DNA testing laboratories adherence to medical guidelines made the following finding: all met some of the guidelines, none met all of the guidelines. Continue Reading

A birthday card & David Foster Wallace’s This is Water

Saturday, I went to see the film, "The End of the Tour," about David Lipsky's interview of the author David Foster Wallace. Earlier that day, I received my first card for my birthday at the end of the month. The card exemplified what Wallace called the big "T" truth.  Continue Reading

Bad news start to new year for those with disabilities

Here are some recent headlines that kick 2015 off with some bad news. But the last item provides some light amongst the darkness. Continue Reading

Gridlocked Congress ABLE to pass key law

The Friday before Christmas, President Obama signed a key piece of legislation into law that will improve the lives of those with disabilities. It showed that gridlock can be overcome by common sense proposals with broad grass roots support.  Continue Reading

The ripple effect of medical outreach

As part of my work with the National Center, we exhibit at medical professional conferences. I look forward to hearing how our efforts effected positive change in serving patients. Continue Reading

Doctors to provide Down syndrome resources under new law

So reads the headline in Medical News, which published my article on the Down Syndrome Information Act in its October issue--appropriate for National Down Syndrome Awareness Month. Here are the relevant links for the article. Continue Reading

Faces in the crowd & Down syndrome awareness

This past weekend, my wife and I enjoyed a trip to New York City. Here's what we saw, and what we didn't see.  Continue Reading