Down Syndrome Prenatal Testing

Mark Leach May 4, 2014

American Idol Caleb Johnson, you just lost your biggest fan. Here’s how to win her back.

This week Caleb Johnson is in the final four for the contestants on American Idol. But, because of a stupid comment, he just lost his biggest fan. Here’s how to win her back. [This post has been updated; scroll to the bottom for updates].

Filed Under: A Life with Down syndrome Tagged With: R-word, Stigmatization

Mark Leach May 1, 2014

We shouldn’t have to justify children with Down syndrome being born

Rachel Adams, the author of Raising Henry, has a piece in the new issue of American Journal of Medical Genetics, Part A. You should read it and its lines should be inscribed in offices around the world.

Filed Under: Informed Decision Making, NIPT, Termination Tagged With: A mother's take, abortion, ethics, informed decision making, NIPS, prenatal testing, Stigmatization

Mark Leach April 23, 2014

Our story: A vision of majesty at Greek Easter

We just returned from a long weekend in L.A. (Lower Alabama) celebrating Greek Easter. Here’s the majesty I saw.

Filed Under: A Life with Down syndrome Tagged With: Living a life with Down syndrome, Our story, Unexpected

Mark Leach April 17, 2014

News: Changing perspectives on seeing those with Down syndrome

Today’s news items have a theme of changing your perspective on how (and where) to see individuals with Down syndrome.

Filed Under: A Life with Down syndrome Tagged With: A mother's take, inclusion, world traveling

Mark Leach April 15, 2014

Today Baby Doe Died

Today was the day in 1982 when Baby Doe died in a maternity ward in a hospital in Indiana. He died because his doctor advised his parents that they could “do nothing.”

Filed Under: A Life with Down syndrome, Informed Decision Making Tagged With: ethics, History, Justice

Mark Leach April 14, 2014

Physicians: too many doing Down syndrome prenatal testing wrong

A study of parents of children with Down syndrome reports on their experiences with finding out the diagnosis. It finds that too many physicians still are doing it wrong.

Filed Under: Informed Decision Making, Termination, The Informed Consent Process Tagged With: compassion, ethics, informed decision making, prenatal testing, Research

Mark Leach April 11, 2014

News: Realizations from having a child with Down syndrome

Been a while since I updated the News page. Here’s some posts from recent days on realizations parents, particularly moms, have made in having a child with Down syndrome.

Filed Under: A Life with Down syndrome, Informed Decision Making Tagged With: A mother's take, Adoption, Living a life with Down syndrome, NIPS

Mark Leach April 9, 2014