small talk (about BIG things)

I'm having the pleasure of reading Amy Julia Becker's newest book, small talk. I expect you will enjoy it as well. Continue Reading

It’s official: Down syndrome is not suffering

Richard Dawkins' tweet on it being immoral not to abort a pregnancy positive for Down syndrome generated many responses. A point of consensus emerged: a life with Down syndrome does not increase suffering. If anything, it increases happiness.  Continue Reading

Which is the harder choice after a prenatal diagnosis: continuing or terminating?

A recent news story presents the question all expectant mothers receiving a prenatal test result for Down syndrome will have to answer for themselves: which is the harder choice, continuing the pregnancy or terminating it? Continue Reading

The 2014 NDSC Convention: reuniting & making new friends

The National Down Syndrome Congress Annual Convention just concluded this weekend. It was a very cool experience giving and attending presentations and reuniting with and making new friends. Continue Reading

Narrative ethics: the power of story in prenatal testing for Down syndrome

This week has brought a confluence of evidence to me showing the power of story in delivering a Down syndrome diagnosis. Continue Reading

Kathy Ratkiewicz, mother, advocate, friend, RIP

The Down syndrome community has lost an advocate and leader. Continue Reading

Delaware and Maryland join Massachusetts and Kentucky in enacting laws to provide information with a Down syndrome test result

Last week, Governor O'Malley of Maryland and then Governor Markell of Delaware each signed laws requiring that their state agencies provide accurate, up-to-date information about Down syndrome for parents receiving a test result. They join Massachusetts (2012) and Kentucky (2013) in passing such legislation. Continue Reading

Support moms grieving their lost child

This Mother's Day, will you support those mothers who are grieving the child they lost? Continue Reading

We shouldn’t have to justify children with Down syndrome being born

Rachel Adams, the author of Raising Henry, has a piece in the new issue of American Journal of Medical Genetics, Part A. You should read it and its lines should be inscribed in offices around the world.  Continue Reading