New guidelines to blindside expectant moms with toxic knowledge

In a surprising twist on what is considered quality, evidence-based healthcare, new guidelines recommend that expectant moms be blindsided with toxic knowledge. Continue Reading

Another year, another change in prenatal testing recommendations by ACOG

Last year, the American Congress of Obstetricians & Gynecologists (ACOG) issued its position statement on non-invasive prenatal screening, recommending it be offered to high-risk expectant mothers. This year, ACOG, along with the Society for Maternal-Fetal  Medicine, recommends a new form of diagnostic testing for expectant mothers. Continue Reading

On Down syndrome prenatal testing, they don’t get to have it both ways

The recent press releases by the American College of Obstetricians and Gynecologists (ACOG) and the video above show the inconsistency in policy positions in obstetric care. Regarding Down syndrome prenatal testing, they shouldn't get to have it both ways. Continue Reading

Paradoxical Genes

I had reason to refer to a column of mine, published a few years ago, called "My Daughter's Paradoxical Genes." It addresses the paradox of the ACOG recommendation that all women be offered prenatal testing for Down syndrome, but a separate ACOG ethics committee condemns the use of prenatal testing for sex  selective abortion. The column remains one of my favorites, and the paradox still has yet to be explained by ACOG. You can read the full article at this link. Continue Reading

We Know Not What We May Be

During the winter break, I tried spending as much time as possible with my family. I treasure how, at the start of December, the day after we put the Christmas tree up, my daughter came downstairs, threw down both her hands, and, exasperated, said, "Daddy--where are all the presents?!" A recent post by Amy Juila Becker got me thinking about an ancient lesson revealed in this the holiday season. Amy Julia is an author, a blogger, and a mother of three. Her oldest, Penny, happens to have Down Continue Reading

Verinata’s Prenatal Testing Flow Chart: Unethical?

As I’ve mentioned before, on the home page there is a scroll of my twitter feed. Like this blog, I typically tweet about news related to Down syndrome and/or prenatal testing. But, sometimes Twitter’s 140-character limit is not enough to provide a thorough analysis of ethical issues. Verinata is a laboratory that developed its version of non-invasive prenatal testing (NIPT), which has the brand name "verifi." Featured on its website is the following decision-making flow chart for prenatal Continue Reading

“The Gradual Trap”–Informed Consent Process: Understanding

In the first post on the Informed Consent Process, I discussed the element of voluntariness. This week's post concerns the element of "understanding" and is prompted by the recent ACOG guidelines on NIPT and an article from this Spring that introduced the notion of "the gradual trap" in the context of prenatal testing. As a reminder, the new ACOG guidelines on NIPT recognize NIPT as a valid testing method for those women considered "high-risk." Many, if not most, of those women will meet that Continue Reading

Breaking News: ACOG Issues New Guidelines on NIPT

Since the 1990's, when fragments of cell free fetal DNA (cffDNA) were found in the mother's blood stream, researchers have been on a quest for what is regularly termed "The Holy Grail" of prenatal testing: a diagnostic test from just a mother's blood sample. If the fetal DNA could be identified and tested, then the fetus' genetic code could be diagnosed. Mothers (and practitioners) would be able to receive a diagnosis without risking miscarriage, as must be done with current diagnostic tests, Continue Reading