Our story: IQ, IEPs, & Injustice

Yesterday, I attended a three-hour IEP meeting for my daughter. It demonstrated the systematic injustice that disables those it labels disabled. Continue Reading

A birthday card & David Foster Wallace’s This is Water

Saturday, I went to see the film, "The End of the Tour," about David Lipsky's interview of the author David Foster Wallace. Earlier that day, I received my first card for my birthday at the end of the month. The card exemplified what Wallace called the big "T" truth.  Continue Reading

Caring for individuals with Down syndrome

One of the main concerns of expectant couples when they learn their child has Down syndrome is "who will help care for our son or daughter?" In the United States, it is humbling to find out how many will help care. Continue Reading

Bad news start to new year for those with disabilities

Here are some recent headlines that kick 2015 off with some bad news. But the last item provides some light amongst the darkness. Continue Reading

3 things about 3/18, National Trisomy 18 Awareness Day

Today is National Trisomy 18 Awareness Day, so chosen as "3/18" represents the genetic cause of Trisomy 18, a third copy of the 18th Chromosome. Here are three things about Trisomy 18. Continue Reading

How the little things a doctor does can make all the difference

While much of modern medicine emphasizes the science, what can make the biggest difference in quality care remains an art. Continue Reading

DoD: counseling needed for Down syndrome prenatal testing

On Monday, Veterans Day, I featured the prenatal testing guidelines for the Department of Defense (DoD) and Veterans Administration (VA). Those guidelines make clear the need for patient counseling when offering prenatal testing for Down syndrome and other genetic conditions. Continue Reading

Bound by love

October is National Down Syndrome Awareness Month. Here's something new parents likely can't be aware of when they first get the diagnosis that their child has Down syndrome.  Continue Reading

An Awe-Inspiring Showing of Support: another truth about Down syndrome walks

Tomorrow is my local organization's annual charitable walk to kick off October being National Down Syndrome Awareness Month. I can't wait. Continue Reading