Persistent challenges: bigotry and ethical prenatal testing

A visit to National Park sites, a presentation to medical professionals in Kansas City, a violent protest in Charlottesville, and a news report out of Iceland all came together in less than a week as a reminder of the persistent challenge of our bigotry against our fellow human beings.  Continue Reading

A&E’s Born This Way: Down syndrome meets The Real World

On Tuesday, December 8, 2015, at 10 pm on A&E, individuals with Down syndrome break down another barrier: they star in a reality-TV show called Born This Way.  Continue Reading

Prenatal Testing Stakeholder Symposium to be held in Washington DC

Thursday, July 16, 2015, an oft-stated, but rarely occurring, meeting will be held. If you can get there, I hope to see you in attendance. Continue Reading

Our story: the innocence of acceptance

Last week on Spring Break, James taught me a lesson on acceptance of others, without even meaning to.  Continue Reading

Leo, abandonment, & life with Down syndrome in some places

The story of baby Leo, his parents' divorce, and his father's fundraising has blown up on the internet. Here's something that may be getting lost in the shuffle.  Continue Reading


This week, I attended the Association of University Centers on Disabilities (AUCD) annual conference where a surprising moment happened.  Continue Reading

Our story: nothing has changed about Down syndrome, except how the world treats those with it

This past Saturday, our family got to experience something that would have been unimaginable when I was born. It shows nothing has changed about Down syndrome, except the way the world treats those with Down syndrome. Continue Reading

News: Changing perspectives on seeing those with Down syndrome

Today's news items have a theme of changing your perspective on how (and where) to see individuals with Down syndrome.  Continue Reading

Take the pledge today to spread the word to end the word

Today's the day to take the pledge to spread the word to end the word.  Continue Reading