What materials did your OB give you about Down syndrome?

When the American College of Obstetricians & Gynecologists (ACOG) changed its recommendations about prenatal testing for Down syndrome in 2007, it emphasized that obstetricians should be "well-informed" about Down syndrome and provide the "natural history" of Down syndrome when delivering a diagnosis. What was your experience? Was your OB well-informed and did they provide you accurate information about living a life with Down syndrome? I ask the question because studies have shown many Continue Reading

Did you get to make a choice?

In 2007, professional guidelines changed. Now, it is recommended that all expectant mothers be offered prenatal testing for Down syndrome. Previously, offering prenatal testing was limited to mothers termed "AMA" or advanced maternal age, i.e. 35 or older. When issuing its updated guidelines, ACOG issued a press release to clarify that the recommendation was simply to offer  prenatal testing for Down syndrome, not that expectant mothers should have prenatal testing. But how effective was ACOG's Continue Reading