New research finds that people with Down syndrome continue to learn throughout their lives and can add functional skills in adult years. Just like the rest of us, they are lifelong learners. Continue Reading
August 8, 2018
Our Story: Traveling with Juliet
With school back in session next week, I took the kids on another week-long trip visiting six national park sites and much more. Here is what it was like to travel with my daughter, Juliet. Continue Reading
May 30, 2018
Our Story: Choosing to take the journey
Today, I leave with my two kids, towing a travel trailer, to drive to Yellowstone National Park. The trip will be fraught with challenges and risks. Yet, we are choosing to take the journey. Continue Reading
January 2, 2018
I wouldn’t cure Down syndrome because then my sister would be different
Reactions to my post on if there was "cure" for Down syndrome, would you do it have come from near and far. Here's a summary, concluding with an honest, heartfelt response from very near to me. Continue Reading
September 12, 2017
Our Story: Support when you need it
Over Labor Day weekend, we experienced an emergency situation. Fortunately, support was there when we needed it. Continue Reading
August 23, 2017
Eclipsing Down syndrome
On August 21, 2017, the first full solar eclipse spanned the continental United States. Our family was there to see it and the experience prompted this reflection on what the world is doing to those with Down syndrome. Continue Reading
February 2, 2017
Our Story: A tale of two disability support programs
Dickens wrote "it was the best of times, it was the worst of times". In the past 48 hours, I've experienced when a system designed to support individuals with disabilities functions optimally and when it functions absurdly. Continue Reading
June 16, 2016
Our Story: camping, hiking, & canoeing the Red River Gorge
This post will have many photographs of a camping trip my kids and I took. They are images that many parents can't imagine when they're told their child has Down syndrome. Continue Reading
April 8, 2016
Our story: Becoming a National Park Service Junior Ranger
Here are some photos from our 2016 Spring Break trip and how Juliet and James became Junior Rangers many times over. Continue Reading
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