Our Story: A tale of two disability support programs

Dickens wrote "it was the best of times, it was the worst of times". In the past 48 hours, I've experienced when a system designed to support individuals with disabilities functions optimally and when it functions absurdly.  Continue Reading

Our Story: camping, hiking, & canoeing the Red River Gorge

This post will have many photographs of a camping trip my kids and I took. They are images that many parents can't imagine when they're told their child has Down syndrome.  Continue Reading

Our story: Becoming a National Park Service Junior Ranger

Here are some photos from our 2016 Spring Break trip and how Juliet and James became Junior Rangers many times over.  Continue Reading

The impact of a life with Down syndrome

What is the impact of a life with Down syndrome? A new study reports on the impact on families and one young woman's life testifies to the impact a life with Down syndrome can have.   Continue Reading

Envisioning a life with a child with Down syndrome

Envisioning a life with a child with Down syndrome is one of the biggest challenges for most expectant parents receiving a prenatal test result. Here's how the testing laboratories' images frame that future and what resources are available to help patients see the possibilities of a future with a child with Down syndrome. Continue Reading

The Parent’s Guide to Down Syndrome: A Review

There's a new resource for parents of children with Down syndrome. It may be just right for you. Continue Reading

A&E’s Born This Way: Down syndrome meets The Real World

On Tuesday, December 8, 2015, at 10 pm on A&E, individuals with Down syndrome break down another barrier: they star in a reality-TV show called Born This Way.  Continue Reading

Rewriting the story of Down syndrome

For many, thanks to deinstitutionalization, education inclusion, and medical treatments, they know a different Down syndrome than others. This new knowledge is rewriting the story of Down syndrome.  Continue Reading

Our story: turning two-thirds of a trisomy

Today is my birthday. This year, I'm two-thirds the number of chromosomes for trisomy 21. Continue Reading