The “tender languor” of Down syndrome

What if one of the ways you could diagnose a person's genetic condition was based on how their body feels? Continue Reading

Medical outreach as cosmic justice

This past weekend, I trained the Bloomington, Indiana-based parent support organization, the Down Syndrome Family Connection, on engaging in effective medical outreach. What I didn't share at the training was how it was a bit of cosmic justice for what happened in Bloomington years ago. Continue Reading

Into our 2nd decade of Down syndrome awareness walks

My family attended our local Down syndrome walk for the 11th straight year. If you haven't already, I hope you'll make this year your first of many of attending your local organization's walk. Continue Reading

Don’t predict what a person with Down syndrome can’t do

This Saturday, after our local Down syndrome awareness walk, the film "Produce" had it's Louisville premiere. It showed how you can't predict what a person with Down syndrome will be able to do. Continue Reading

Louisville Premiere: “Produce” the Movie!

This Saturday night is the Louisville premiere of the movie Produce. What a great way to kick off National Down Syndrome Awareness Month. Continue Reading

Happy Anniversary National Down Syndrome Awareness Month

October was proclaimed National Down Syndrome Month in 1984. How do you plan to celebrate this anniversary? Continue Reading

People with Down syndrome love their lives.

This is the third in a series of posts about how parents feel about their child with Down syndrome, how siblings feel about their brother or sister, and now, how the individuals with Down syndrome feel about themselves.  Continue Reading

On having a brother or sister with Down syndrome

Today is the last day of National Down Syndrome Awareness Month. And, tonight, my son and daughter will go trick-or-treating for Halloween. What is the effect on siblings of having a brother or sister with Down syndrome? Continue Reading

On parenting a child with Down syndrome

October is winding down and with it, National Down Syndrome Awareness Month. I wanted to share two studies on a key concern of expectant parents when they find out their child has Down syndrome. Continue Reading