You are here:Home Archives for PPACA
September 27, 2013

A Down Syndrome Mid-Life Crisis

I turn 40 this weekend. As I look back and look forward, I see a mid-life crisis for Down syndrome.  Continue Reading

Filed Under: Informed Decision Making Tagged With: , , , , , , , , ,
August 29, 2013

What’s your view on prenatal testing for Down syndrome?

Researchers at Standford want to know what you think about prenatal testing for Down syndrome and other genetic conditions. Continue Reading

Filed Under: Informed Decision Making, NIPT Tagged With: , , , , ,
July 17, 2013

On Down syndrome prenatal testing, they don’t get to have it both ways

The recent press releases by the American College of Obstetricians and Gynecologists (ACOG) and the video above show the inconsistency in policy positions in obstetric care. Regarding Down syndrome prenatal testing, they shouldn't get to have it both ways. Continue Reading

Filed Under: Informed Decision Making, Termination Tagged With: , , , , , , , , ,
May 28, 2013

With Down syndrome, what are we choosing to invest in?

I wrote previously about how some describe the damage of disability as the lack of support by society for individuals with disabilities. It prompts the question: with Down syndrome, what are we choosing to invest in?  Continue Reading

Filed Under: Informed Decision Making Tagged With: , , , , , , , ,
December 19, 2012

Is Prenatal Testing for Down Syndrome an “Essential Health Benefit”?

In a previous post, I posted the comment I submitted that is due on December 26. This post provides a fuller explanation of the proposed regulation and the reasons for my comment. I invite you to submit your own comment on the proposed regulation. Read on to find out why. With the election over, the Department for Health and Human Services (HHS) has issued regulations to fully implement the Patient Protection and Affordable Care Act (PPACA), aka “Obamacare.” The comment period for one of the Continue Reading

Filed Under: The Informed Consent Process Tagged With: , ,
December 17, 2012

Questions RE: Down Syndrome Prenatal Testing Being an “Essential Health Benefit”

In a longer piece to be published later, I explain how the Department for Health & Human Services (HHS) has issued a proposed regulation where prenatal testing for Down syndrome will likely be covered as an essential health benefit (EHB) under the healthcare reform law, aka “Obamacare.” HHS is accepting comments on the proposed regulation through December 26, 2012. So, this Boxing Day, please celebrate with me by submitting a comment on the proposed regulation. Below is the text of the Continue Reading

Filed Under: The Informed Consent Process, Uncategorized Tagged With: , ,