October is National Down Syndrome Awareness Month. In 2015, groups combined in an effort to ensure patients receive accurate information with the delivery of a test result of Down syndrome for their child. Continue Reading
August 26, 2015
Ohio pro-life bill incentivizes Down syndrome selective abortion
The Ohio legislature is considering a bill that would ban an abortion because of a Down syndrome prenatal test result. But, there could be a disturbing unintended consequence if the bill becomes law. Continue Reading
August 25, 2015
CNN’s Alisyn Camerota: fact-checking claimed “costs” of Down syndrome lives
In discussing a recent state bill to ban Down syndrome selective abortions, CNN's Alisyn Camerota corrected her guest on his figures, but the ones she cited are even more troubling. Continue Reading
July 9, 2015
Prenatal Testing Stakeholder Symposium to be held in Washington DC
Thursday, July 16, 2015, an oft-stated, but rarely occurring, meeting will be held. If you can get there, I hope to see you in attendance. Continue Reading
March 16, 2015
Fact sheet for the Down Syndrome Information Act
Many states have passed the Down Syndrome Information Act. More states are considering enacting it each year. A resource is available to help states implement the law consistent with professional guidelines. Continue Reading
March 2, 2015
Florida passes the Down Syndrome Information Act
Joining the growing list of states that have passed the Down Syndrome Information Act, Florida did so before every other state but Massachusetts. Continue Reading
February 24, 2015
Down syndrome: dad keeps son, a mom terminates, and a state tries to ban selective abortions
Three stories that kicked off 2015 involving Down syndrome have drawn commentary from fellow parent/bloggers worth considering: Continue Reading
February 2, 2015
COMMENTS DUE TODAY: FDA considering regulating cell free DNA testing
The FDA is considering regulating laboratory developed tests ("LDTs"). MaterniT21, verifi, Harmony, and Panorama are all LDTs. Today is the last day to submit comments to the FDA. Here's mine on why the FDA should regulate LDTs. Continue Reading
January 27, 2015
International Holocaust Remembrance Day: finally a memorial for the disabled
In 2014, a memorial was finally erected for those first victims of the Nazi euthanasia program: the disabled. Continue Reading
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