Research & Potential Treatments for Down Syndrome: What Do You Think?

At the beginning of June, I attended a conference of researchers seeking treatments for conditions associated with Down syndrome. This month, a survey is seeking your input on what you think about treatments for Down syndrome.  Continue Reading

Experimental embryonic stem cell “treatment” for Down syndrome–any ethical issues here?

In New Delhi, India a baby received multiple injections of human embryonic stem cells as an experimental treatment for Down syndrome. Any ethical issues here?  Continue Reading

Down syndrome: not a costly burden to be prevented

Research now shows that a child with Down syndrome costs less than $3 a day more in health expenses than a child without Down syndrome. This research should cause obstetricians, genetic counselors, expectant parents, and policymakers to revise their view of how costly a life with Down syndrome really is (or isn't).  Continue Reading

GONE: estimate reduced by 20% of people with Down syndrome in United States

In 2013, researchers estimated that the total number of people living in the United States was 40% less than the historically cited number. Three years later, that estimate has been revised down further by 20%. Continue Reading

The impact of a life with Down syndrome

What is the impact of a life with Down syndrome? A new study reports on the impact on families and one young woman's life testifies to the impact a life with Down syndrome can have.   Continue Reading

2015 Down Syndrome Prenatal Testing Year in Review

Here are the top five posts posted in 2015: Continue Reading

CNN’s Alisyn Camerota: fact-checking claimed “costs” of Down syndrome lives

In discussing a recent state bill to ban Down syndrome selective abortions, CNN's Alisyn Camerota corrected her guest on his figures, but the ones she cited are even more troubling.  Continue Reading

The NDSC & DSMIG Conferences: Alzheimer’s, regression, resources, & friends

How can a person have Alzheimer's, but not? I learned about this and more at the 2015 National Down Syndrome Congress' annual convention in Phoenix, Arizona. Continue Reading

A sick, unethical cycle: prenatal testing for Down syndrome

So many items have cropped up in the past two weeks that here is a listing of all this news about Down syndrome prenatal testing. They lead to a sad conclusion. Continue Reading