Presidents’ Day: who did the most for individuals with intellectual and developmental disabilites?

It's Presidents' Day: which President did the most for individuals with intellectual and developmental disabilities? Continue Reading

Our Story: A tale of two disability support programs

Dickens wrote "it was the best of times, it was the worst of times". In the past 48 hours, I've experienced when a system designed to support individuals with disabilities functions optimally and when it functions absurdly.  Continue Reading

Our Story: camping, hiking, & canoeing the Red River Gorge

This post will have many photographs of a camping trip my kids and I took. They are images that many parents can't imagine when they're told their child has Down syndrome.  Continue Reading

Our Story: An Open Thank You Note to My Daughter’s Elementary School

I'm of the generation whose mothers made them write thank you notes for gifts received. Consider this an open thank you note to the gift my daughter's elementary school gave her and us.  Continue Reading

How Down syndrome prenatal screening’s administration is about elimination … & what’s needed to change that

In her column in Forbes, Kavin Senapathy, a self-styled scientific mythbuster, took on claims that prenatal genetic testing has as its purpose eliminating those with Down syndrome. Unfortunately, her column retold myths and she based her mythbusting on fantasy. Continue Reading

The Parent’s Guide to Down Syndrome: A Review

There's a new resource for parents of children with Down syndrome. It may be just right for you. Continue Reading

Our story: A compliment at Chick-fil-A

A stop on a roadtrip, and the simplest of compliments, reminded me of how good some people can be towards others, particularly those who happen to have Down syndrome. Continue Reading

3 Steps to Increasing Down Syndrome Awareness

Today is #GivingTuesday. Here are 3 easy steps you can take today to increase Down syndrome awareness with medical professionals and new and expectant parents.  Continue Reading

Balancing prenatal information: medical outreach by local Down syndrome support organizations

Prenatal testing for Down syndrome is supposed to be about providing information to expectant mothers. But, most mothers are not receiving all the information. Some local support organizations are trying to bridge this information gap. Continue Reading