I didn’t expect them to be as good as they are

  The featured video is about the Jensen-Schmidt Tennis Academy for Down syndrome and runs around 5 minutes. The Academy is a two-day program where individuals with Down syndrome of all ages are paired one-on-one with volunteer instructors to take them through drills and learn tennis basics. The Academy was the inspiration of a father of a child with Down syndrome and a French Open Doubles winner. The messages from the parents are touching and the ones from the volunteers are powerful. Continue Reading

Guess who was at the 2013 Golden Globes?

Last year, it was a photo with George Clooney. This year, a photo with Dame Helen Mirren. I doubt Lauren's parents (or anyone for that matter) would have expected at the time the diagnosis of Down syndrome was delivered that Lauren would go on to have a recurring role in a smash TV show and attend premier Hollywood awards parties. Adding to the list of examples that demonstrate the wisdom I wrote about in this post. Continue Reading

We Know Not What We May Be

During the winter break, I tried spending as much time as possible with my family. I treasure how, at the start of December, the day after we put the Christmas tree up, my daughter came downstairs, threw down both her hands, and, exasperated, said, "Daddy--where are all the presents?!" A recent post by Amy Juila Becker got me thinking about an ancient lesson revealed in this the holiday season. Amy Julia is an author, a blogger, and a mother of three. Her oldest, Penny, happens to have Down Continue Reading

In Memoriam: Donna Lee Preston, An Unexpected Life

On the “About Me” page, I mention that I am involved with several organizations devoted to serving individuals with intellectual disabilities. A week ago, a member of one of those organizations passed away. Her name was Donna Lee Preston, and she lived an unexpected life. Donna was born in another era for individuals with Down syndrome. She was raised in a time when institutionalization was the medically-recommended option following birth and before the modern era of early intervention, Continue Reading

A Review of Andrew Solomon’s New Book: Far from [what] tree?

Andrew Solomon's new book, "Far From the Tree," has been receiving a lot of coverage lately--and deservedly so. But, his final assessment begs the question: "Far from what tree?" Solomon's title sums up the contents of his weighty tome. Ten of the twelve chapters are devoted to a single condition each, e.g. Chapter 2, Deaf, Ch. 5, Autism, Ch. 11, Transgender. The title comes from Solomon's assessment that children born with differing conditions than their parents are in some fundamental way Continue Reading

Giving Thanks: For those who get to know those with Down syndrome

Happy Thanksgiving! For those going through prenatal testing for Down syndrome, let us give thanks for those who make the effort to get to know more about Down syndrome. Continue Reading