Persistent challenges: bigotry and ethical prenatal testing

STLA visit to National Park sites, a presentation to medical professionals in Kansas City, a violent protest in Charlottesville, and a news report out of Iceland all came together in less than a week as a reminder of the persistent challenge of our bigotry against our fellow human beings. Continue Reading

Iowa Supreme Court recognizes wrongful birth claim

From a 2013 Illinois Bar Journal article on the Illinois Supreme Court allowing emotional distress damages in wrongful birth claims

On June 2, 2017, the Iowa Supreme Court recognized for the first time the claim of “wrongful birth”. The Court also recognized that the state legislature may enact legislation barring such claims. 

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Research & Potential Treatments for Down Syndrome: What Do You Think?


At the beginning of June, I attended a conference of researchers seeking treatments for conditions associated with Down syndrome. This month, a survey is seeking your input on what you think about treatments for Down syndrome. 

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Baby Doe Redux, but even worse

Charlie Gard

In March, parents trusted their doctors with the care for their son with a very rare condition. The doctors have now convinced courts to rule that death is more beneficial for the child than continued treatment. And, the parents can’t do anything about it. 

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Adoption: Absolutely Beautiful

National Down Syndrome Adoption Network logo

Here is a nine-minute video that introduces the National Down Syndrome Adoption Network and its director, Stephanie Thompson. 

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Our Story: D.C. & Agitate. Agitate. Agitate. (3 of 3)


This is the third and final installment on our Spring Break trip to Washington, D.C. It concludes with an admonition on what those who would advocate for oppressed groups should do. 

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Our Story: D.C. & Traveling with a Child with Down syndrome (2 of 3)


This is the second of three installments about our family’s recent tour of D.C. for the kids’ Spring Break. The first installment provided a rundown of the many sites we visited. This post will share a message for new and expectant parents of children with Down syndrome (but others may appreciate it as well).

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Our Story: D.C. & Interconnected Lives (1 of 3)


Spring Break 2017 was spent touring the District of Columbia with an emphasis on National Parks Service sites. Here is the first of three posts inspired by that trip. This post is a rundown of the sites we visited and some of the highlights at each. The next post will have a message for new […]

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Presidents’ Day: who did the most for individuals with intellectual and developmental disabilites?

Lincoln Collage

It’s Presidents’ Day: which President did the most for individuals with intellectual and developmental disabilities?

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