A pamphlet supposed to be for post-diagnosis must discuss prenatal testing?

Indianapolis, host city for 2014 NDSC convention

Indianapolis, host city for 2014 NDSC convention

At least that’s what it’s creator says.Continue Reading

NDSC, GDSF, prenatal testing, and abortion

Indianapolis, host city for 2014 NDSC convention

The previous post dealt with three of the four reasons given for creating the NDSC/GDSF pamphlet. But it was the fourth reason that got all the attention when the pamphlet launched in November 2012: abortion.

Continue reading...

The 2014 NDSC Convention: prenatal testing for Down syndrome resources

Indianapolis, host city for 2014 NDSC convention

At the 2014 National Down Syndrome Convention in Indianapolis, Indiana, David Tolleson, NDSC’s executive director, and Michelle Whitten of Global Down Syndrome Foundation (GDSF) presented on their organizations’ updated prenatal testing pamphlet. Here are some observations from that presentation.

Continue reading...

The 2014 NDSC Convention: reuniting & making new friends

Your author presenting at the 2014 NDSC convention

The National Down Syndrome Congress Annual Convention just concluded this weekend. It was a very cool experience giving and attending presentations and reuniting with and making new friends.

Continue reading...

Narrative ethics: the power of story in prenatal testing for Down syndrome

IMG_2202[1]

This week has brought a confluence of evidence to me showing the power of story in delivering a Down syndrome diagnosis.

Continue reading...

The National Down Syndrome Congress Convention: a very cool experience

Indianapolis, host city for 2014 NDSC convention

This weekend is the National Down Syndrome Congress’ annual convention. Are you attending?

Continue reading...

Radio interview: NDSC convention & prenatal testing presentation

blogtalkradiobutton

In case you missed it, here is the link for the radio interview I did about about my presentation at the upcoming National Down Syndrome Congress Convention. 

Continue reading...

#NeverAlone

Juliet, on the day she was born

No parent should be alone when they find out their child has Down syndrome. But, right now, too many are.

Continue reading...

Louisiana joins in passing the Down Syndrome Information Act

Seal_of_Louisiana_2010

Sort of. But a key addition to Louisiana’s law may result in expectant mothers actually NOT receiving information about Down syndrome.

Continue reading...