Our story: turning two-thirds of a trisomy

Juliet signs the registry at Lincoln Birthplace National Historic Site

Juliet signs the registry at Lincoln Birthplace National Historic Site

Today is my birthday. This year, I’m two-thirds the number of chromosomes for trisomy 21.Continue Reading

Balancing prenatal information: medical outreach by local Down syndrome support organizations

DSI Medical Outreach

Prenatal testing for Down syndrome is supposed to be about providing information to expectant mothers. But, most mothers are not receiving all the information. Some local support organizations are trying to bridge this information gap.

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A birthday card & David Foster Wallace’s This is Water

bday card cover

Saturday, I went to see the film, “The End of the Tour,” about David Lipsky’s interview of the author David Foster Wallace. Earlier that day, I received my first card for my birthday at the end of the month. The card exemplified what Wallace called the big “T” truth. 

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Our story: defying expectations to make a difference

Juliet at the Indiana Lincoln Bicentennial Memorial

Over the Labor Day Weekend, my kids and I went camping at Lincoln State Park in Southern Indiana. As my daughter walked where Lincoln did, I thought of defying expectations to make a difference. 

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Ohio pro-life bill incentivizes Down syndrome selective abortion

ORTL graphic

The Ohio legislature is considering a bill that would ban an abortion because of a Down syndrome prenatal test result. But, there could be a disturbing unintended consequence if the bill becomes law.

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CNN’s Alisyn Camerota: fact-checking claimed “costs” of Down syndrome lives


In discussing a recent state bill to ban Down syndrome selective abortions, CNN’s Alisyn Camerota corrected her guest on his figures, but the ones she cited are even more troubling. 

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New Resource for World Breastfeeding Week


World Breastfeeding Week is the first week of August in 2015. A new resource helps new moms with breastfeeding an infant with Down syndrome.

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The NDSC & DSMIG Conferences: Alzheimer’s, regression, resources, & friends

DSMIG Research Poster 2015--Leach

How can a person have Alzheimer’s, but not? I learned about this and more at the 2015 National Down Syndrome Congress’ annual convention in Phoenix, Arizona.

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Prenatal Testing Stakeholder Symposium to be held in Washington DC

PIRC Symposium

Thursday, July 16, 2015, an oft-stated, but rarely occurring, meeting will be held. If you can get there, I hope to see you in attendance.

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