Our Story: D.C. & Traveling with a Child with Down syndrome (2 of 3)

ThStoneThis is the second of three installments about our family’s recent tour of D.C. for the kids’ Spring Break. The first installment provided a rundown of the many sites we visited. This post will share a message for new and expectant parents of children with Down syndrome (but others may appreciate it as well).Continue Reading

Our Story: D.C. & Interconnected Lives (1 of 3)

BadgesPatches

Spring Break 2017 was spent touring the District of Columbia with an emphasis on National Parks Service sites. Here is the first of three posts inspired by that trip. This post is a rundown of the sites we visited and some of the highlights at each. The next post will have a message for new […]

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Presidents’ Day: who did the most for individuals with intellectual and developmental disabilites?

Lincoln Collage

It’s Presidents’ Day: which President did the most for individuals with intellectual and developmental disabilities?

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Our Story: A tale of two disability support programs

LN Stairs

Dickens wrote “it was the best of times, it was the worst of times”. In the past 48 hours, I’ve experienced when a system designed to support individuals with disabilities functions optimally and when it functions absurdly. 

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Experimental embryonic stem cell “treatment” for Down syndrome–any ethical issues here?

guinea-pig-1

In New Delhi, India a baby received multiple injections of human embryonic stem cells as an experimental treatment for Down syndrome. Any ethical issues here? 

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Our Story: The Long Arc of History Bending Towards Justice

MLK NHS

For Martin Luther King, Jr.’s national holiday, my kids and I toured seven National Park Service sites. They illustrated the truth of Dr. King’s wisdom that the arc of the moral universe is long, but it bends towards justice.

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Labs Band Together To Increase Coverage for Their Prenatal Tests

CAPS

I have a post at the Prenatal Information Research Consortium about a coalition of prenatal testing laboratories seeking increased insurance coverage for their cell free DNA screening tests. It addresses the possible issues raised by this coalition representing in its mission to provide useful information to providers and insurers, while also working to increase reimbursement […]

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Top Posts of 2016: Down Syndrome Prenatal Testing

Juliet & her winning photograph of her brother in the school's art contest

Here are the top 5 posts (based on views) from 2016: 

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Down syndrome: not a costly burden to be prevented

Money

Research now shows that a child with Down syndrome costs less than $3 a day more in health expenses than a child without Down syndrome. This research should cause obstetricians, genetic counselors, expectant parents, and policymakers to revise their view of how costly a life with Down syndrome really is (or isn’t). 

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