Cure for Down syndrome promised with just a single injection

If you could give your loved one with Down syndrome a shot that would eliminate their extra 21st Chromosome, would you? This may be a very real question in the not too distant future.  Continue Reading

Iowa Supreme Court recognizes wrongful birth claim

On June 2, 2017, the Iowa Supreme Court recognized for the first time the claim of "wrongful birth". The Court also recognized that the state legislature may enact legislation barring such claims.  Continue Reading

Research & Potential Treatments for Down Syndrome: What Do You Think?

At the beginning of June, I attended a conference of researchers seeking treatments for conditions associated with Down syndrome. This month, a survey is seeking your input on what you think about treatments for Down syndrome.  Continue Reading

Adoption: Absolutely Beautiful

Here is a nine-minute video that introduces the National Down Syndrome Adoption Network and its director, Stephanie Thompson.  Continue Reading

Our Story: D.C. & Traveling with a Child with Down syndrome (2 of 3)

This is the second of three installments about our family's recent tour of D.C. for the kids' Spring Break. The first installment provided a rundown of the many sites we visited. This post will share a message for new and expectant parents of children with Down syndrome (but others may appreciate it as well). Continue Reading

Presidents’ Day: who did the most for individuals with intellectual and developmental disabilites?

It's Presidents' Day: which President did the most for individuals with intellectual and developmental disabilities? Continue Reading

Top Posts of 2016: Down Syndrome Prenatal Testing

Here are the top 5 posts (based on views) from 2016:  Continue Reading

Down syndrome: not a costly burden to be prevented

Research now shows that a child with Down syndrome costs less than $3 a day more in health expenses than a child without Down syndrome. This research should cause obstetricians, genetic counselors, expectant parents, and policymakers to revise their view of how costly a life with Down syndrome really is (or isn't).  Continue Reading

A new web app for Down syndrome prenatal resources

There is a new way to access in more ways than ever the most widely-recognized and acclaimed resource for parents receiving a prenatal test result for Down syndrome.  Continue Reading