Persistent challenges: bigotry and ethical prenatal testing

A visit to National Park sites, a presentation to medical professionals in Kansas City, a violent protest in Charlottesville, and a news report out of Iceland all came together in less than a week as a reminder of the persistent challenge of our bigotry against our fellow human beings.  Continue Reading

Top Posts of 2016: Down Syndrome Prenatal Testing

Here are the top 5 posts (based on views) from 2016:  Continue Reading

Down syndrome: not a costly burden to be prevented

Research now shows that a child with Down syndrome costs less than $3 a day more in health expenses than a child without Down syndrome. This research should cause obstetricians, genetic counselors, expectant parents, and policymakers to revise their view of how costly a life with Down syndrome really is (or isn't).  Continue Reading

GONE: estimate reduced by 20% of people with Down syndrome in United States

In 2013, researchers estimated that the total number of people living in the United States was 40% less than the historically cited number. Three years later, that estimate has been revised down further by 20%. Continue Reading

Abortion and Down syndrome prenatal testing

Two developments in the Spring of 2016 have focused on abortion and Down syndrome prenatal testing.  Continue Reading

Our story: Becoming a National Park Service Junior Ranger

Here are some photos from our 2016 Spring Break trip and how Juliet and James became Junior Rangers many times over.  Continue Reading

Eugenics: then and now in the era of prenatal testing for Down syndrome

Is prenatal testing for Down syndrome eugenics? Let's compare how eugenics programs were justified in the past with how prenatal testing is currently administered. Continue Reading

Our story: juvenile attitudes towards people with Down syndrome

A hike through Cumberland Gap National Historical Park provided a teachable moment. Continue Reading

How Down syndrome prenatal screening’s administration is about elimination … & what’s needed to change that

In her column in Forbes, Kavin Senapathy, a self-styled scientific mythbuster, took on claims that prenatal genetic testing has as its purpose eliminating those with Down syndrome. Unfortunately, her column retold myths and she based her mythbusting on fantasy. Continue Reading