While Daniel Day-Lewis did not deliver the message I hoped for, I learned of another connection one of the winners had with Down syndrome, and I had no idea it was so close. Continue Reading
February 7, 2013
What I hope Daniel Day-Lewis says at the Oscars
Daniel Day-Lewis is the odds-on favorite to win a historic third Best Actor Oscar. I hope he will say what we thought he would say in 2008, and speak to the billion people watching on the value of his brother-in-law. Continue Reading
January 17, 2013
A Dream of a Brighter Future
Monday is Martin Luther King, Jr. Day. It seems fitting to observe on this holiday honoring the great civil rights leader what many have called the next civil rights movement. The new wave of prenatal testing advances has brought into focus what we mean by America's creed that all are created equal. Continue Reading
January 17, 2013
I didn’t expect them to be as good as they are
The featured video is about the Jensen-Schmidt Tennis Academy for Down syndrome and runs around 5 minutes. The Academy is a two-day program where individuals with Down syndrome of all ages are paired one-on-one with volunteer instructors to take them through drills and learn tennis basics. The Academy was the inspiration of a father of a child with Down syndrome and a French Open Doubles winner. The messages from the parents are touching and the ones from the volunteers are powerful. Continue Reading
January 15, 2013
Words matter: how to describe NIPT & Down syndrome
This news report is far better than most I have seen in providing balance in the information shared about the new non-invasive prenatal testing (NIPT) for Down syndrome (and it's the first I ever remember seeing where an amniocentesis is actually filmed as it is performed). That said, what words or phrases or the way the information is presented jump out at you as having room for improvement in being less biased against Down syndrome? I have suggested to the leadership of the Canadian Continue Reading
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