Here are the top five posts posted in 2015: Continue Reading
Archives for 2015
December 23, 2015
Our story: A compliment at Chick-fil-A
A stop on a roadtrip, and the simplest of compliments, reminded me of how good some people can be towards others, particularly those who happen to have Down syndrome. Continue Reading
December 14, 2015
ISIS issues fatwa to kill children with Down syndrome: is that wrong?
The Islamic State in Iraq & Syria (ISIS) has issued a fatwa to kill children with disabilities, including those with Down syndrome. Is this wrong? Continue Reading
December 14, 2015
Will the FDA regulate Sequenom (and other cfDNA labs)?
Sequenom launched its MaterniT21 cell free DNA screen on the marketplace in October 2011. Four years later, screens like Sequenom's remain largely unregulated. The FDA is moving to change that. Continue Reading
December 8, 2015
A&E’s Born This Way: Down syndrome meets The Real World
On Tuesday, December 8, 2015, at 10 pm on A&E, individuals with Down syndrome break down another barrier: they star in a reality-TV show called Born This Way. Continue Reading
December 4, 2015
The ABLE Act: changing the cost of a life with Down syndrome
Since the House of Representatives passed the ABLE Act in December 2014, it has gone on to be enacted into law with dozens of states already enacting enabling legislation for the ABLE savings accounts and the Treasury Department finalizing regulations for these accounts. A thought occurred on the impact these savings accounts will also have on prenatal genetic testing. Continue Reading
December 1, 2015
3 Steps to Increasing Down Syndrome Awareness
Today is #GivingTuesday. Here are 3 easy steps you can take today to increase Down syndrome awareness with medical professionals and new and expectant parents. Continue Reading
November 2, 2015
Sequenom’s Whole Genome Sequencing: Reckless Prenatal Care
Sequenom, the maker of MaterniT21, has announced a further expansion of its testing: MaterniT Genome. This continues the reckless practice of prenatal genetic testing. Continue Reading
October 19, 2015
Rewriting the story of Down syndrome
For many, thanks to deinstitutionalization, education inclusion, and medical treatments, they know a different Down syndrome than others. This new knowledge is rewriting the story of Down syndrome. Continue Reading
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