From the News page, some good news, some incorrect news (reporting), and a new development for Baby Gammy: Continue Reading
Archives for 2015
COMMENTS DUE TODAY: FDA considering regulating cell free DNA testing
The FDA is considering regulating laboratory developed tests ("LDTs"). MaterniT21, verifi, Harmony, and Panorama are all LDTs. Today is the last day to submit comments to the FDA. Here's mine on why the FDA should regulate LDTs. Continue Reading
Ignorant people say stupid things about Down syndrome
From the news page, purportedly independent-thinking people say stupid things about Down syndrome, while a grandmother shares wisdom gained from having a granddaughter with Down syndrome. Continue Reading
International Holocaust Remembrance Day: finally a memorial for the disabled
In 2014, a memorial was finally erected for those first victims of the Nazi euthanasia program: the disabled. Continue Reading
Our story: 10 years after receiving the diagnosis
This past Saturday, we had an opportunity to see what a difference a decade makes from the day you receive the diagnosis that your child has Down syndrome. Continue Reading
Pro-life should not hijack pro-information
By hijacking a law that has bipartisan support for their own agenda, pro-life efforts may actually lead to more abortions of babies with Down syndrome. Continue Reading
Indiana bill to ban Down syndrome abortions
A bill has been introduced in Indiana to ban selective abortions for Down syndrome. It has already been the subject of some commentary. Here's mine. Continue Reading
We do not want sympathy, but we do want love and support
At the News page, some highlights on what you can't expect when you receive a prenatal test result for Down syndrome. Continue Reading
Get the facts about Down syndrome prenatal testing
In effort to clear up the widespread confusion about non-invasive prenatal screening (NIPS), also known as cell free DNA testing, the National Society of Genetic Counselors (NSGC) has issued a fact sheet. Get the facts about this testing. Continue Reading
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