Archives for 2015

From the news page: NHL, NPR, NIH, & Baby Gammy Update

From the News page, some good news, some incorrect news (reporting), and a new development for Baby Gammy: Continue Reading

COMMENTS DUE TODAY: FDA considering regulating cell free DNA testing

The FDA is considering regulating laboratory developed tests ("LDTs"). MaterniT21, verifi, Harmony, and Panorama are all LDTs. Today is the last day to submit comments to the FDA. Here's mine on why the FDA should regulate LDTs. Continue Reading

Ignorant people say stupid things about Down syndrome

From the news page, purportedly independent-thinking people say stupid things about Down syndrome, while a grandmother shares wisdom gained from having a granddaughter with Down syndrome. Continue Reading

International Holocaust Remembrance Day: finally a memorial for the disabled

In 2014, a memorial was finally erected for those first victims of the Nazi euthanasia program: the disabled. Continue Reading

Our story: 10 years after receiving the diagnosis

This past Saturday, we had an opportunity to see what a difference a decade makes from the day you receive the diagnosis that your child has Down syndrome.  Continue Reading

Pro-life should not hijack pro-information

By hijacking a law that has bipartisan support for their own agenda, pro-life efforts may actually lead to more abortions of babies with Down syndrome.  Continue Reading

Indiana bill to ban Down syndrome abortions

A bill has been introduced in Indiana to ban selective abortions for Down syndrome. It has already been the subject of some commentary. Here's mine.  Continue Reading

We do not want sympathy, but we do want love and support

At the News page, some highlights on what you can't expect when you receive a prenatal test result for Down syndrome.  Continue Reading

Get the facts about Down syndrome prenatal testing

In effort to clear up the widespread confusion about non-invasive prenatal screening (NIPS), also known as cell free DNA testing, the National Society of Genetic Counselors (NSGC) has issued a fact sheet. Get the facts about this testing. Continue Reading