Here is a nine-minute video that introduces the National Down Syndrome Adoption Network and its director, Stephanie Thompson. Continue Reading
Archives for 2017
April 25, 2017
Our Story: D.C. & Agitate. Agitate. Agitate. (3 of 3)
This is the third and final installment on our Spring Break trip to Washington, D.C. It concludes with an admonition on what those who would advocate for oppressed groups should do. Continue Reading
April 17, 2017
Our Story: D.C. & Traveling with a Child with Down syndrome (2 of 3)
This is the second of three installments about our family's recent tour of D.C. for the kids' Spring Break. The first installment provided a rundown of the many sites we visited. This post will share a message for new and expectant parents of children with Down syndrome (but others may appreciate it as well). Continue Reading
April 10, 2017
Our Story: D.C. & Interconnected Lives (1 of 3)
Spring Break 2017 was spent touring the District of Columbia with an emphasis on National Parks Service sites. Here is the first of three posts inspired by that trip. This post is a rundown of the sites we visited and some of the highlights at each. The next post will have a message for new and expectant parents based on this trip. The final post will seek to learn from these history lessons and apply them to modern day advocacy efforts by and on behalf of those with Down syndrome. Continue Reading
February 20, 2017
Presidents’ Day: who did the most for individuals with intellectual and developmental disabilites?
It's Presidents' Day: which President did the most for individuals with intellectual and developmental disabilities? Continue Reading
February 2, 2017
Our Story: A tale of two disability support programs
Dickens wrote "it was the best of times, it was the worst of times". In the past 48 hours, I've experienced when a system designed to support individuals with disabilities functions optimally and when it functions absurdly. Continue Reading
January 25, 2017
Experimental embryonic stem cell “treatment” for Down syndrome–any ethical issues here?
In New Delhi, India a baby received multiple injections of human embryonic stem cells as an experimental treatment for Down syndrome. Any ethical issues here? Continue Reading
January 19, 2017
Our Story: The Long Arc of History Bending Towards Justice
For Martin Luther King, Jr.'s national holiday, my kids and I toured seven National Park Service sites. They illustrated the truth of Dr. King's wisdom that the arc of the moral universe is long, but it bends towards justice. Continue Reading
January 12, 2017
Labs Band Together To Increase Coverage for Their Prenatal Tests
I have a post at the Prenatal Information Research Consortium about a coalition of prenatal testing laboratories seeking increased insurance coverage for their cell free DNA screening tests. It addresses the possible issues raised by this coalition representing in its mission to provide useful information to providers and insurers, while also working to increase reimbursement by private and public insurers. You can read more about the Coalition at my post linked here. Continue Reading
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