A&E’s Born This Way: Down syndrome meets The Real World

On Tuesday, December 8, 2015, at 10 pm on A&E, individuals with Down syndrome break down another barrier: they star in a reality-TV show called Born This Way.  Continue Reading

The ABLE Act: changing the cost of a life with Down syndrome

Since the House of Representatives passed the ABLE Act in December 2014, it has gone on to be enacted into law with dozens of states already enacting enabling legislation for the ABLE savings accounts and the Treasury Department finalizing regulations for these accounts. A thought occurred on the impact these savings accounts will also have on prenatal genetic testing. Continue Reading

Rewriting the story of Down syndrome

For many, thanks to deinstitutionalization, education inclusion, and medical treatments, they know a different Down syndrome than others. This new knowledge is rewriting the story of Down syndrome.  Continue Reading

Our story: defying expectations to make a difference

Over the Labor Day Weekend, my kids and I went camping at Lincoln State Park in Southern Indiana. As my daughter walked where Lincoln did, I thought of defying expectations to make a difference.  Continue Reading

New Resource for World Breastfeeding Week

World Breastfeeding Week is the first week of August. Here is a resource to help new moms with breastfeeding an infant with Down syndrome. Continue Reading

The NDSC & DSMIG Conferences: Alzheimer’s, regression, resources, & friends

How can a person have Alzheimer's, but not? I learned about this and more at the 2015 National Down Syndrome Congress' annual convention in Phoenix, Arizona. Continue Reading

Caring for individuals with Down syndrome

One of the main concerns of expectant couples when they learn their child has Down syndrome is "who will help care for our son or daughter?" In the United States, it is humbling to find out how many will help care. Continue Reading

Where Hope Grows: a role for Down syndrome

Where Hope Grows, a film that opened on May 15, 2015, shows there is a role for Down syndrome in this world. Continue Reading

Where Hope Grows: National Premiere this Friday

It's getting hot outside and the summer blockbusters are rolling out. Make plans to go see Where Hope Grows when it premieres this Friday, May 15, 2015 at a theater near you. Continue Reading