How can a person have Alzheimer's, but not? I learned about this and more at the 2015 National Down Syndrome Congress' annual convention in Phoenix, Arizona. Continue Reading
July 30, 2014
How a pamphlet did not provide information to expectant mothers
The development and re-development of Global Down Syndrome Foundation's (GDSF) pamphlet for expectant mothers (which covers prenatal testing options and the basics about Down syndrome) has deprived women of professionally recommended information about Down syndrome for years. Continue Reading
July 24, 2014
A pamphlet supposed to be for post-diagnosis must discuss prenatal testing?
At least that's what it's creator says. Continue Reading
July 22, 2014
NDSC, GDSF, prenatal testing, and abortion
The previous post dealt with three of the four reasons given for creating the NDSC/GDSF pamphlet. But it was the fourth reason that got all the attention when the pamphlet launched in November 2012: abortion. Continue Reading
July 17, 2014
The 2014 NDSC Convention: prenatal testing for Down syndrome resources
At the 2014 National Down Syndrome Convention in Indianapolis, Indiana, David Tolleson, NDSC's executive director, and Michelle Whitten of Global Down Syndrome Foundation (GDSF) presented on their organizations' updated prenatal testing pamphlet. Here are some observations from that presentation. Continue Reading
July 14, 2014
The 2014 NDSC Convention: reuniting & making new friends
The National Down Syndrome Congress Annual Convention just concluded this weekend. It was a very cool experience giving and attending presentations and reuniting with and making new friends. Continue Reading
March 27, 2014
Photo tour of 2014 ACMG Meeting
Here are some images from the 2014 ACMG annual meeting. Take a photo tour with me: Continue Reading
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