The development and re-development of Global Down Syndrome Foundation's (GDSF) pamphlet for expectant mothers (which covers prenatal testing options and the basics about Down syndrome) has deprived women of professionally recommended information about Down syndrome for years. Continue Reading
Archives for July 2014
July 25, 2014
Pennsylvania passes the Down Syndrome Information Act
In 2014, Pennsylvania joined the growing number of states passing the Down Syndrome Information Act. It's implementation needs to be improved. Continue Reading
July 24, 2014
A pamphlet supposed to be for post-diagnosis must discuss prenatal testing?
At least that's what it's creator says. Continue Reading
July 22, 2014
NDSC, GDSF, prenatal testing, and abortion
The previous post dealt with three of the four reasons given for creating the NDSC/GDSF pamphlet. But it was the fourth reason that got all the attention when the pamphlet launched in November 2012: abortion. Continue Reading
July 17, 2014
The 2014 NDSC Convention: prenatal testing for Down syndrome resources
At the 2014 National Down Syndrome Convention in Indianapolis, Indiana, David Tolleson, NDSC's executive director, and Michelle Whitten of Global Down Syndrome Foundation (GDSF) presented on their organizations' updated prenatal testing pamphlet. Here are some observations from that presentation. Continue Reading
July 14, 2014
The 2014 NDSC Convention: reuniting & making new friends
The National Down Syndrome Congress Annual Convention just concluded this weekend. It was a very cool experience giving and attending presentations and reuniting with and making new friends. Continue Reading
July 10, 2014
Narrative ethics: the power of story in prenatal testing for Down syndrome
This week has brought a confluence of evidence to me showing the power of story in delivering a Down syndrome diagnosis. Continue Reading
July 7, 2014
The National Down Syndrome Congress Convention: a very cool experience
This weekend is the National Down Syndrome Congress' annual convention. Are you attending? Continue Reading
July 2, 2014
Radio interview: NDSC convention & prenatal testing presentation
In case you missed it, here is the link for the radio interview I did about about my presentation at the upcoming National Down Syndrome Congress Convention. Continue Reading
Recent Comments