Archives for 2015

Laws require Doctors give Down syndrome information with prenatal test

October is National Down Syndrome Awareness Month. In 2015, groups combined in an effort to ensure patients receive accurate information with the delivery of a test result of Down syndrome for their child.  Continue Reading

Our story: turning two-thirds of a trisomy

Today is my birthday. This year, I'm two-thirds the number of chromosomes for trisomy 21. Continue Reading

Balancing prenatal information: medical outreach by local Down syndrome support organizations

Prenatal testing for Down syndrome is supposed to be about providing information to expectant mothers. But, most mothers are not receiving all the information. Some local support organizations are trying to bridge this information gap. Continue Reading

A birthday card & David Foster Wallace’s This is Water

Saturday, I went to see the film, "The End of the Tour," about David Lipsky's interview of the author David Foster Wallace. Earlier that day, I received my first card for my birthday at the end of the month. The card exemplified what Wallace called the big "T" truth.  Continue Reading

Our story: defying expectations to make a difference

Over the Labor Day Weekend, my kids and I went camping at Lincoln State Park in Southern Indiana. As my daughter walked where Lincoln did, I thought of defying expectations to make a difference.  Continue Reading

Ohio pro-life bill incentivizes Down syndrome selective abortion

The Ohio legislature is considering a bill that would ban an abortion because of a Down syndrome prenatal test result. But, there could be a disturbing unintended consequence if the bill becomes law. Continue Reading

CNN’s Alisyn Camerota: fact-checking claimed “costs” of Down syndrome lives

In discussing a recent state bill to ban Down syndrome selective abortions, CNN's Alisyn Camerota corrected her guest on his figures, but the ones she cited are even more troubling.  Continue Reading

New Resource for World Breastfeeding Week

World Breastfeeding Week is the first week of August. Here is a resource to help new moms with breastfeeding an infant with Down syndrome. Continue Reading

The NDSC & DSMIG Conferences: Alzheimer’s, regression, resources, & friends

How can a person have Alzheimer's, but not? I learned about this and more at the 2015 National Down Syndrome Congress' annual convention in Phoenix, Arizona. Continue Reading