This past Saturday, our family got to experience something that would have been unimaginable when I was born. It shows nothing has changed about Down syndrome, except the way the world treats those with Down syndrome. Continue Reading
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May 19, 2014
Our story: nothing has changed about Down syndrome, except how the world treats those with it
January 21, 2014
From the News page: Prenatal testing to explode & 98% termination rate reported
Below is the collection of news reports, blog posts, and opinion pieces collected for today related to Down syndrome and prenatal testing. The stories today seemed to have a theme more than other days. Continue Reading
December 30, 2013
Top blog posts of 2013
Continuing the year in review, this second installment will cover the most read blog posts of 2013: Continue Reading
November 8, 2013
Not a termination rate. An elimination rate.
If you haven't noticed, a while back I added a "News" page to the blog (you can find the link under the tab for "Articles" on the homepage). Here's a news item where a 90% termination rate would actually be lower than what is happening. Continue Reading
August 26, 2013
GONE: 150,000 fewer people with Down syndrome in the U.S.
The long-stated estimated number of people living with Down syndrome in the United States had been 400,000. This number has been reduced by almost 40 percent. Continue Reading
August 12, 2013
“We never thought for a moment we would aid in the eradication of Down syndrome”
NBC News's Health blog featured a long post on the new research that "turns off" the extra 21st Chromosome in Down syndrome. There are many things to learn from it. Continue Reading
August 6, 2013
Down syndrome birth statistics, so far
Over at Down Syndrome Affiliates in Action (DSAIA), my report on birth statistics has been posted. It explains the above graph showing an overall decline in Down syndrome births in 2013, so far. Continue Reading
July 31, 2013
Maternal age, the chance for Down syndrome, and prenatal testing
In 2007, the medical guidelines changed from only offering women 35 years old and older prenatal testing for Down syndrome to offering it to all expectant mothers. This, however, should not mean maternal age is irrelevant when considering prenatal testing. And, it turns out, something commonly reported about maternal age is incorrect. Continue Reading
July 25, 2013
Before we silence Down syndrome, shouldn’t we try to understand it better?
Reactions to the news of the researchers "turning off" the extra 21st Chromosome that is the genetic cause of Down syndrome continue to be shared. Yesterday brought the most concise explanation of the actual research and a question that has not yet been raised about it. Continue Reading
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