Happy Anniversary for Down Syndrome Prenatal Testing

This blog was launched on November 12, 2012. Here's why I launched the blog, the most viewed post from the past year, a post needing some more views, and a request if you've found this blog useful over the past year. Continue Reading

News coverage on the Kentucky Down Syndrome Information Act

In 2013, as part of October being National Down Syndrome Awareness Month, WHAS-11, the local ABC affiliate, hosted my daughter and me for a segment on the Kentucky Down Syndrome Information Act.  Continue Reading

Who raises Down syndrome awareness at medical conferences?

October is National Down Syndrome Awareness Month. Today, I head home from the largest annual convention for genetics. Who is raising Down syndrome awareness at these conferences? Continue Reading

Doctors to provide Down syndrome resources under new law

So reads the headline in Medical News, which published my article on the Down Syndrome Information Act in its October issue--appropriate for National Down Syndrome Awareness Month. Here are the relevant links for the article. Continue Reading

What have we learned about the new Down syndrome prenatal test?

In 2011, a new prenatal test for Down syndrome entered the market offering earlier, safer, and more accurate results. What have we learned about this new technology since then? Continue Reading

To raise Down syndrome awareness, get the information

With October being National Down Syndrome Awareness Month, here are two great opportunities to get the information to raise that awareness. Continue Reading

The role of community in dealing with loss

In his recent book, Rod Dreher shares the story of his sister Ruthie's final time on earth battling  lung cancer and how it led him back to his small hometown in Louisiana. The book caused me to weep, and has a message worth sharing here. Continue Reading

Wear a cool t-shirt at a conference & get a free book

Many of my readers will be traveling this week to Denver for this year's conference for the National Down Syndrome Congress (NDSC). Here's an opportunity to get a free book simply by looking cool at the conference. Continue Reading

Is it already happening or are Down syndrome births disappearing because of the all-time low U.S. birthrate?

I have asked for reports from local parent support organizations by next Monday, July 15, 2013, on the number of births they have welcomed in 2013 and in the past several years. The more reports received from across the nation will give a better picture of whether this is a part of a national trend. Continue Reading