Yesterday, the Governor of North Dakota signed House Bill 1305, prohibiting sex-selective abortion and abortion for genetic abnormality. That same day, the Governor also signed a law banning abortion once a fetal heartbeat is detected. As a result, with abortion being invoked, the media reporting and instant comments devolved into pro-life/pro-choice arguments. But let's look at the actual language of the law that concerns Down syndrome abortions and see what it actually says before we choose Continue Reading
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March 19, 2013
WDSD & The Down Syndrome Information Act on TV
WDRB 41 Louisville - News, Weather, Sports Community Thursday is World Down Syndrome Day (WDSD). March 21st was chosen as the numerical date, 3/21, reflects the genetic cause of Down syndrome, a triplicate of the 21st Chromosome. Today, a local news affiliate featured my local organization in preparation for WDSD. Watch the video to see self-advocate Chris getting ready to make our host breakfast and your blog's author interviewed about the recently-passed Down Syndrome Information Continue Reading
March 6, 2013
“What you call people is how you treat them”: the significance of the r-word campaign
Today is the day to raise awareness about the R-word campaign, led by Special Olympics and Best Buddies. You can sign the pledge here to make "retard" and "retarded" go the way of the "N-word" and become the "r-word." It is a significant campaign, even if some consider it mere semantics or political correctness. Continue Reading
February 20, 2013
What is a legacy?
In this post-modern, existential age, it can cause some to wonder what's the point of anything. How can we say anything we do truly matters? Well, on Monday, we said goodbye to a lady whose actions many families would say mattered to them. Continue Reading
February 18, 2013
Getting ready for the Down Syndrome Affiliates in Action conference
What should you do if you are attending the Down Syndrome Affiliates in Action Annual Conference? Continue Reading
February 12, 2013
Two birthdays with competing legacies
Ten score and four years ago today, Abraham Lincoln was born. That same day 204 years ago also was the birthday of Charles Darwin. The competing legacies of these two men twist through history like the spiraling parallel sides of the DNA molecule. Continue Reading
February 7, 2013
What I hope Daniel Day-Lewis says at the Oscars
Daniel Day-Lewis is the odds-on favorite to win a historic third Best Actor Oscar. I hope he will say what we thought he would say in 2008, and speak to the billion people watching on the value of his brother-in-law. Continue Reading
January 9, 2013
An Open Letter to NDSS, NDSC, and GDSF: Answers Still Needed
It has been over 40 days since the open letter to NDSS, NDSC, and GDSF was posted seeking answers to a few questions. Tweets to the organizations and an e-mail to the leadership of each organization with a copy of the open letter provided also were sent. The holidays, understandably, may have interfered with a response being provided. With the start of the new year, just as 2012 began, questions remain as to what the national plan is, and, specifically, the questions asked in the open letter Continue Reading
December 3, 2012
A Review of Andrew Solomon’s New Book: Far from [what] tree?
Andrew Solomon's new book, "Far From the Tree," has been receiving a lot of coverage lately--and deservedly so. But, his final assessment begs the question: "Far from what tree?" Solomon's title sums up the contents of his weighty tome. Ten of the twelve chapters are devoted to a single condition each, e.g. Chapter 2, Deaf, Ch. 5, Autism, Ch. 11, Transgender. The title comes from Solomon's assessment that children born with differing conditions than their parents are in some fundamental way Continue Reading
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