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November 25, 2012

“These attributes do not define those we love.”

On the right side of the homepage, you'll see a scroll of my twitter feed. Unlike common uses of twitter, I do not update my followers where I'm eating dinner or what I think of the movie I'm watching. Instead, most all posts are links to news reports about Down syndrome. I invite you to follow the feed to see the news of the day. Some articles, however, are deserving of a larger exposition than the 140-character limit of Twitter. An article from last week is just so deserving. Dominic Continue Reading

Filed Under: A Life with Down syndrome Tagged With: , , ,
November 21, 2012

Giving Thanks: For those who get to know those with Down syndrome

Happy Thanksgiving! For those going through prenatal testing for Down syndrome, let us give thanks for those who make the effort to get to know more about Down syndrome. Continue Reading

Filed Under: A Life with Down syndrome, Informed Decision Making Tagged With: , , , , ,
November 19, 2012

The Informed Consent Process: Voluntariness

There are many ethical issues involved with prenatal testing for Down syndrome. I hope in time to address as many as possible. To start with, however, is the ethical concept that commentators have cited as making the offering of prenatal testing a moral obligation: informed consent. Informed consent has a rich history that developed in the United States through court decisions and was codified as an international norm in The Nuremberg Code. Out of respect for an individual's autonomy--the Continue Reading

Filed Under: Informed Decision Making, The Informed Consent Process Tagged With: , ,
November 14, 2012

Top 5 Homecoming King & Queen Stories from NDSAM

  October is National Down Syndrome Awareness Month (NDSAM). And, each year, as regularly as football games kick-off, there are stories of high school students with Down syndrome being crowned homecoming king and queen. Some of the reporting is of the patronizing sort, which rightly deserves the derision by my friend Krista Flint (and other champions of inclusion). But, it seems with increasing frequency, there are fewer stories about the young person "suffering" from Down syndrome Continue Reading

Filed Under: A Life with Down syndrome