The power of context to create a Down syndrome prenatal testing epidemic

In his National Bestseller, The Tipping Point: how little things can make a big difference, Malcolm Gladwell identifies three elements to creating an epidemic, from the spread of disease to a social trend. With two of the three being built into prenatal testing for Down syndrome, the final element will determine the tipping point of whether […]

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What are we losing if Down syndrome disappears?

In a previous post, I reported on an account that suggests Down syndrome may already be starting to disappear from our society. But, if that is the case, what are we losing if Down syndrome disappears?

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You may decline prenatal testing, but you may be choosing to be sued if you do

Last week, Art Caplan, a well-known bioethicist, wrote a post for Harvard Law’s Bill of Health blog. The post prompted one commenter to write, “Caplan, you are a laughable clown.” Whatever did Caplan write?

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The world doesn’t get to have it both ways with Down syndrome

Last week, my daughter was assessed to determine whether she qualified for a waiver under our state’s Medicaid program. When informed that she may be initially denied–and many wrongfully are–I thought, “you don’t get to have it both ways.”

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Is Down syndrome already starting to disappear?

Since the dawn of prenatal testing and selective abortion, critics and commentators have wondered whether Down syndrome will disappear from society. Experience this year suggests that it may now be happening.

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What to do with a poorly wrapped gift?

A featured letter to the editor posed a question that offers a different perspective on a prenatal test result for Down syndrome.

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With Down syndrome, what are we choosing to invest in?

I wrote previously about how some describe the damage of disability as the lack of support by society for individuals with disabilities. It prompts the question: with Down syndrome, what are we choosing to invest in? 

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Perhaps the greatest example of inclusion

Today we celebrate Memorial Day in the United States. It’s a day for us to remember those who gave the last full measure in service to their country. While this post concerns those actively serving, I thought it appropriate for today, nonetheless.

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Wrongful birth and abortion: what’s the damage of disability?

In a very moving article, Kristina Chew wrote of her son, who has autism, and whether she would have aborted him if given the chance through prenatal testing. In South Africa, a couple was awarded 4.4 million Rand (or about $440,000) precisely because they were not told prenatally their child had Down syndrome–they said they […]

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