What are national advocacy organizations doing about the high termination rate for Down syndrome?

Monday, Matthew Hennessy wrote about my posts covering the reasons a pamphlet was created when the identified resource had already been established. But his critique is off target. Continue Reading

Which is the harder choice after a prenatal diagnosis: continuing or terminating?

A recent news story presents the question all expectant mothers receiving a prenatal test result for Down syndrome will have to answer for themselves: which is the harder choice, continuing the pregnancy or terminating it? Continue Reading

NDSC, GDSF, prenatal testing, and abortion

The previous post dealt with three of the four reasons given for creating the NDSC/GDSF pamphlet. But it was the fourth reason that got all the attention when the pamphlet launched in November 2012: abortion. Continue Reading

Louisiana joins in passing the Down Syndrome Information Act

Sort of. But a key addition to Louisiana's law may result in expectant mothers actually NOT receiving information about Down syndrome. Continue Reading

We shouldn’t have to justify children with Down syndrome being born

Rachel Adams, the author of Raising Henry, has a piece in the new issue of American Journal of Medical Genetics, Part A. You should read it and its lines should be inscribed in offices around the world.  Continue Reading

What is the clinical utility of Down syndrome prenatal testing?

Yesterday's post on the Society for Maternal-Fetal Medicine's statement saying noninvasive prenatal screening isn't ready for the general population left out a significant sentence. It raises the question: what is the clinical utility of Down syndrome prenatal testing? Continue Reading

Abortion, in the news

Abortion is inextricably intertwined with prenatal testing for Down syndrome and remains the option most women choose following a prenatal test result. As such, here are some items about abortion offered pursuant to the purpose of this blog: providing information for those involved in prenatal testing for Down syndrome. Continue Reading

TBT: Michael Garcia, Archbishop Chaput, & the ginger gene

Throwback Thursday: some news items from previous last weeks of January. Archbishop Chaput says expectant parents deserve to know that a child with Down syndrome can create joy for others. A waiter refused to serve a customer insulting a child with Down syndrome. A father tells a doctor never to see another patient after the way he delivered a prenatal diagnosis. And, genetic testing expands to detect the "ginger gene."  Continue Reading

International Holocaust Remembrance Day: do we remember?

Today is International Holocaust Remembrance Day. But do we remember?  Continue Reading