The development and re-development of Global Down Syndrome Foundation's (GDSF) pamphlet for expectant mothers (which covers prenatal testing options and the basics about Down syndrome) has deprived women of professionally recommended information about Down syndrome for years. Continue Reading
July 25, 2014
Pennsylvania passes the Down Syndrome Information Act
In 2014, Pennsylvania joined the growing number of states passing the Down Syndrome Information Act. It's implementation needs to be improved. Continue Reading
July 24, 2014
A pamphlet supposed to be for post-diagnosis must discuss prenatal testing?
At least that's what it's creator says. Continue Reading
July 22, 2014
NDSC, GDSF, prenatal testing, and abortion
The previous post dealt with three of the four reasons given for creating the NDSC/GDSF pamphlet. But it was the fourth reason that got all the attention when the pamphlet launched in November 2012: abortion. Continue Reading
July 17, 2014
The 2014 NDSC Convention: prenatal testing for Down syndrome resources
At the 2014 National Down Syndrome Convention in Indianapolis, Indiana, David Tolleson, NDSC's executive director, and Michelle Whitten of Global Down Syndrome Foundation (GDSF) presented on their organizations' updated prenatal testing pamphlet. Here are some observations from that presentation. Continue Reading
June 9, 2014
Pastor heals Down syndrome prenatally with prayer!
Um, no he didn't. But this story reveals why screening tests are just that, and why a definitive diagnosis can only come from invasive diagnostic testing. Continue Reading
May 26, 2014
Memorial Day: the importance of having a mission
For this Memorial Day, ask yourself: what in your life is worth living for? Continue Reading
May 1, 2014
We shouldn’t have to justify children with Down syndrome being born
Rachel Adams, the author of Raising Henry, has a piece in the new issue of American Journal of Medical Genetics, Part A. You should read it and its lines should be inscribed in offices around the world. Continue Reading
April 14, 2014
Physicians: too many doing Down syndrome prenatal testing wrong
A study of parents of children with Down syndrome reports on their experiences with finding out the diagnosis. It finds that too many physicians still are doing it wrong. Continue Reading
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